Learning About Ito-chan’s Condition
Here, we share easy-to-understand information about Ito-chan’s condition, Spondyloepiphyseal Dysplasia Congenita (SEDC), together with what we have learned and experienced as her family.
We hope these articles can be helpful not only to families on a similar journey, but also to anyone who wants to learn more about rare skeletal conditions.
Our goal is to create a place where people can leave feeling, “I’m glad I read this.”
01 | What Is Spondyloepiphyseal Dysplasia Congenita (SEDC)?
— What We Learned After Our Daughter’s Diagnosis
Article 01 is free to read. Articles from 02 onward are available for ¥100 each.
02 | 💰Why Is the Neck So Important in SEDC?
— Understanding the Cervical Spine
03 | Why Is It Difficult for Ito-chan to Drink Milk?
Understanding cleft palate and nasogastric tube feeding.
04 | How Will a Child with SEDC Grow?
— Height and Physical Growth
05 | Is SEDC Inherited? What About Future Children?
— Understanding COL2A1 and Genetics
